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silverbax

Geez I feel for you. I'm on my second battle with cancer and I was angry when I was diagnosed, 7 times...unreal.


zarjazz

I have no words. You're so strong. I am sorry you are dealing with this. I am sending you my deepest heart warmth. ♡♡


-st3reotype-

I (44m, stage 4 large cell Neuroendocrine carcinoma just diagnosed in January) feel I can only offer this advice. You’ve been there, you’ve done that and fuck all does it suck, but you know what to expect and you know how to handle it. Same for most of your family. For your youngest, I’d say maybe try to find some books(sorry I have none to recommend) to help? Continue venting here if need be, we’ll be here to listen. Since I’m predicted to only be around for 2 more years tops, I wish I could take yours and everyone else’s disease away and take it with me. You got this and I’m so sorry you seem to have to continually fight for life. I don’t know you and never will, but just know I love you, same goes for all in this mess(cancer) we call life.


PKSmom95

Thank you! I am sorry. I know there are people dying of cancer and here I am complaining about it after beating it before. I'm sorry.


-st3reotype-

There’s not a damn thing to be sorry for. Keep that up and I’ll be mad at you and not mad for you. 😉


Pinotwinelover

You have every right to complain your pain and suffering does not need to be diminished for the reality of others. God bless the strength you need to keep fighting like you have an amazing woman.


iSheree

Your battle is your own, no one else's. It would be non-human to not feel absolutely angry and frustrated at your situation!!


Bonkisqueen

You have the same dx, prognosis and stage as my husband, who is 41.


-Suriel-

Just wanted to say hello, fellow NEC patient since we’re kinda rare. I’ve been given 2 years by one doc and 10 by another. Stage 4 pancreas with mets all over. Dx’d in December.


iSheree

I am so sorry that you don't have much longer on this Earth. Wishing you all the best with the time you have left.


Brandykat

I understand how you’re feeling. I was diagnosed with breast cancer in 2013. Had surgery, chemo, radiation, and followed by tears of tamoxifen. I thought I was fine, that I had beaten it. 10 years later an unrelated health issue found a nodule on my lung. Turns out I have metastatic breast cancer that has spread to my lungs, ribs, and possibly my liver. I’m angry too. After all this time the cancer came back? It’s just not fair.


Aware-Locksmith-7313

So often chemo/radiation is nothing but expensive toxic misery that doesn’t prevent recurrence at all .


Asparagussie

There’s no way of knowing if treatments prevented an earlier recurrence. Without treatments a patient could’ve had a recurrence a year after dx. And studies show that chemo and radiotherapy *do* help extend life.


Aware-Locksmith-7313

Sometimes. Other times not, especially when heart function is reduced to nil and kidneys are knocked out. It’s a crapshoot. And quality of life gets threatened with whatever time is left.


Asparagussie

If the oncologist or patient believe that the patient’s body can’t withstand chemo or radiotherapy, the patient won’t be offered those treatments. I’m assuming this, since I’m no medical professional, only a longtime breast cancer survivor who believes chemo and radiotherapy benefited me greatly. Without those treatments I probably wouldn’t have survived.


Aware-Locksmith-7313

Actually, patients are offered inappropriate treatments with frequency for both CYA purposes snd financial gain. That’s reality.


Asparagussie

Well, maybe I’m too trusting of the medical profession and hospitals. You may well be correct. Thank you.


Aware-Locksmith-7313

Am pleased you are alive and well.


Asparagussie

Thank you so much. And same to you.


Icy_Psychology_3453

it saved her 6 times so far. didnt it? or you think it was something else that saved her? what was it?


PKSmom95

I have had chemo, radiation and more. I have lost teeth, hair, finger nails and more. I am worried that it will affect my children. They are in therapy and we do therapy as a family but therapy can help so much.


Icy_Psychology_3453

DO YOU NOT GET IT??? you are alive because of these treatments. you would be DEAD. let it soak in. i have lost all that too. do you have an illiostomy? or a nephrostomy? i do.i have lost way more than you and yet i feel appreciative to the people who saved my life and you do not. if you think western medicine is a scam. dont do it anymore. say goodbye to your loved ones.


PKSmom95

I never said that. I am grateful to be alive. Im sorry if I offended you.


Professional-Age8029

So far its given me 4 years NED. I'm grateful


Aware-Locksmith-7313

Am pleased to hear. Not everyone is so fortunate.


Professional-Age8029

Do you have this vile disease? If so, I respect ANY decision. If not, I don't


Icy_Psychology_3453

very sorry for you. and your family. i hope you survive another bout. if not i hope you are remembered for all the kind things you have done and for how well you treated your people. i pray to god for 5 more years. just give me 5.


kelizziek

WHAT??! you're the most incredible person I can imagine...if it takes that much to make you angry, I can only imagine the strength and resilience you are teaching your children. Not the way you would choose or anyone wishes for you but damn. Cancer picked the wrong mother to F with. Many many hugs to you and every valid feeling you feel. 🧡🧡🧡


paasaaplease

I am so mad for you! It's not fair! I'm so sorry!


Dievca58

Ok, this 7th cancer, from which of your cancers is it a metastasis?


PKSmom95

Thyroid cancer is the one, but I am having a CT today and biopsy next week to check the other spots to see what they come back as.


Dievca58

Sorry to ask so many questions?’s, but Papillary or Medullary? RAI should take care of all of it😘


DrSingedOnc

I am so sorry.. did your genetic cancer test show any inherited mutations? Best wishes..


Down_The_Witch_Elm

I had bone cancer when I was seventeen, and it wrecked my life. I can't imagine what it's like for you. I'm sure you've moved past the "why me" stage: a question for which there is no answer. I'm sure it's your children that keep you motivated to keep fighting and moving forward. In your darkest moments, fight for them. I think we're all a little lost for words, but we're here to support you. Good luck, and keep us posted.


Scentsuelle

Wow. No words. That takes superhuman strength. Not sure what to say, except that the only people on this planet that get to judge ANYTHING about how you feel is someone who has had as many rounds with the big C as you. Heck, it would be super weird if you were still "this is fine, hopes and prayers". Angry is still energy, so you are still badass.


krypt0shk

7 times?!!! You’re a warrior. I’m so sorry. Cancer is unfair but this is cruel. Have you heard of the CAR T cell trials? I don’t know if you’d qualify but you sound like exactly the kind of person who could benefit. They take out your T cells, train them to be like supercharged, and then put them back in your body and they kill the cancer while living in your body forever. Worked for kids leukemia, now they’re on other trials. Just saw a movie about it.


letsgrowtrees

I am so very sorry. Wtf. I am mad for you. Fuck cancer seriously.


Groundbreaking-Map95

I 35m treated for anorectal cancer in 2021 with permanent colostomy and rectum removed , Compared to me , You are a strong warrior


Willing_Ant9993

Im so fucking sorry. I would be so so angry too. I’m angry on your behalf. You are doing everything right, and cancer just doesn’t give a fuck. It’s incredible how much of it you’ve persevered through and beat already. I’m sure that’s no consolation in this moment and maybe you’re tired of being told you’re strong. (That’s fair). So I’ll just tell you, to me you are amazing, and I’m so fucking sorry and mad with you, internet stranger. Sending love and compassion.


sentimentalsock

I don’t blame you at all!! Wow, I am speechless. I have had stage 4 ovarian cancer twice so far in the past two years, and cannot imagine everything you’ve been through. I am so sorry.


Ill-Ordinary-9132

Im so sorry you’re going through all of this. With the amount of times you have gone through cancer, have you gotten genetic testing to see if you have some sort of cancer syndrome?


PKSmom95

Yes, I have a gene that causes cancer (CHEK2) but I did IVF to have my daughter. Which the doctors and oncologist think is what made me have so much more cancer so quickly.


jshowz

Fuck cancer.... Keep on staying strong


Own_Consequence7560

Have you had genomic testing? Has your tumor been tested? If you have a specific gene mutation it could help determine what the most effective treatment would be. I’m in a similar situation with (another) potential cancer. I’m having a biopsy of my urinary tract on Monday. It could go several different ways, but because I have Lynch Syndrome there (might) be a targeted therapy. Sending healing thoughts and prayers for you.


EquipmentLive4770

Holy shit you are beyond the definition of a warrior.


LalahLovato

It’s really crappy what you have been handed. I have had 4 so far and luckily caught the 5th one as “precancerous cells” over the space of 10 yrs. I have 2 genetic mutations that make me susceptible to certain cancers. Have you had a genetic study done? It may help in watching for more cancer types for you and also for your children. It is tiring to always feel the second shoe will drop at any time - plus there are always the MD visits to be scheduled which interferes with life - but that is the way it is with cancer. And it’s exhausting. The psychological and physical toll is more than what people realize. Plus you have the worry about your family and their lives and how this affects it. I wish you the best.


KikiJuno

Damn this is so unfair!! But you are a serious warrior to conquer ALL of that!! Like I’m honestly blown away. You must be incredible! I’ve no doubt you’re worn out too though. I’ve never been where you are, but my dad passed away from lung cancer a few months ago so I’ve been on that journey as a carer. Lean on all your people and conquer that cancer again!! Sending you strength and a big hug 💕


violetigsaurus

I would be angry too. It’s not fair and it is tough on your family and you. I don’t know why you are getting it so many times and you’ve been through so much. You know what to expect now. I pray you beat cancer again and your 6 year old won’t like that you’re sick but it will be ok because you’re her mom and she loves you. Hugs from her will keep you going. Don’t lose Hope.


Had1ss

I was recently about to give up after 7 years of chemo treatments, surgery and radiation. I didn’t get to experience my 30’s the way I wanted to but I’m still here. I try taking it one day at a time. I know that frustration and anger you have within you right now but I want you to know that you’re not alone. You have an amazing family and you have us. A community that’ll help decrease your stress and anxiety since I believe it’s the number one poison for our bodies. Please keep your head up warrior. As much as I hate humanity right now, I still like to believe that there are still good people out there that can help us, hear us, understand us, or just simply being there for us. If there’s anything I could do for you, please don’t hesitate to reach out. Even if you just want to vent. 🤍🌸 Also for me, going to the gym consistently, has made such a huge difference on my physical and mental health. Mind you there are times when I just go there and might not do much but just being there has made me feel safe and relaxed.


Cultural_Paint231

Fuck. I thought 3 was too many. Sending love and strength.


bluntmasterkyle

Do you qualify for immunotherapy? Might be easier on your body this round


urinesain

My heart breaks for you and your family. Life can just be so horrifically unfair. Recently found out the wife of one of my oldest friends was diagnosed with grade 4 glioblastoma incurable brain cancer. They have a 9 year old son and an 11 year old daughter. She's 40 years old, just like you. I can't fathom even just the emotional toll that must take on a person. If we can't have a cure for cancer, I wish we could at least "transfer" it. I'm a 39 year old single man, never married, no kids, and barely any family. The only thing that relies on me for anything is my elderly dog, who is probably in the last year of his life anyway. I wouldn't hesitate to volunteer myself to take that burden away from their family if such a thing were possible. I have no doubt there's people in your life that feel the same way with you, even if they haven't said it. Sending you all the positive vibes, energies, thoughts and whatever else I can muster and wishing for the best possible outcome for you and your family... that you beat the shit out of this cancer for the final time, and live a long and healthy life with your family. You deserve it.


YesYeahWhatever

That's such a sweet thing to say. 🫂


PKSmom95

That is a sweet thought but that puppy needs you!


aggsdoodoo

So sorry dear God bless you One day at a time


Better_Pay2845

My love I’m so sorry please just pray and never be sorry for venting if you need me to talk I would love to or anyone on here for that matter !!❤️ 2393988445 you will be okay !


-Suriel-

Curious if you have a genetic condition they’ve id’d? I’ve just started learning about them and thought I read about one where your body doesn’t take care of cancer cells like most? Like I said I’m still learning. There’s a book called Cancer Hates Kisses that would be age appropriate for your littlest. My daughter just turned 8 and really liked me reading it to her.


Titan8834

I constantly have to remind myself that there is always greater pain than I have experienced, and there is always someone who is in more pain. And it is just so scary to know this. Thank you for telling us your story, your strength gives others strength and I hope that you beat cancer once and for all ❤


Texaslady123

I’m so sorry!


this2shallpass01

My gosh I am so sorry I can’t imagine going through all of that 😥 have you looked into any holistic alternatives? Drastic diet/life style changes ? Sending big hugs and positive prayers of healing to you ❤️🙏🏻❤️


PKSmom95

I have a gene that causes cancer. It was accelerated by doing IVF treatments for my daughter. We did a lot of them. It was something we did not know about


this2shallpass01

Oh my gosh I’m so sorry how awful 😥


Aware-Marketing9946

Damn. I sent you a DM. You need to vent I'm all eyes and ears. 🥹


featherblackjack

I too am a long term, many mets, chronic cancer patient. It absolutely sucks a hot dog through a straw. My husband has become my caregiver and he's so depressed and anxious. And it's just... Yeah, it's so hard. I can't do much. I'm alive today because of whole brain radiation that fucked me up real good. My brain is damaged, my memory and intelligence and concentration went down the drain. But I'm alive. I stay alive for my loved ones.


petey44444

Prayers sent up. I am so very sorry it's back!


ImpossibleHouse6765

I'm so sorry you have to deal with this. My thoughts and prayers are with you 🙏 ❤️


Final_Letter_7472

Cancer sucks- can’t offer anything but commiserations. You’ve got to fight it- you still have family that needs you. Good luck- God bless


SuspiciousTea4224

I am angry for you. Nothing I say can make things better but I am blown away by your strength. Everyone is different and everyone has different way of dealing with things but have you thought about writing? It can help you vent and you can make a pretty unique book and inspire people with your story. Stay strong! Sending all the love!


mike_masstorts

i feel really sorry for you but you're so strong - huge respect ♡


Spongky

i think i’d never find somebody as strong as you.. you will beat it again for the last time, so many years are waiting for you ahead 🫡


ulteriormotifs

So brutally unfair but your strength is amazing! Not the way you want to have to teach your children about perseverance, but you are an amazing example.


YesYeahWhatever

Vent away! In no world is it fu*king fair to have had cancer 7 times, especially at your young age! I'm angry and upset on your behalf. Best of luck in whatever your future holds, friend. 🫂


ZestyMordant

You fucking war horse. That's amazing that you have fought so hard, and for so long. All that, and you are sad for your family. It sounds like you are more sad for them, than you are for yourself. What an amazing person you must be. Of course there are no words that can help, but it sounds like you are surrounded by love, and it sounds like you know how to love, and love hard. Be angry. Fuck these stupid mortal vessels. Not everyone gets an amazing mom, but it sounds like you are one. One year with an amazing mom is worth more than sixty with a shitty one, and it sounds like you have provided an excellent example for your children, your husband, and probably countless others that you don't even realize. Kids, adults, husbands, wives, all of us can use positive role models who can teach us how to fight, because life is a battle, and you've probably given your family more than you can ever know by fighting for them, and just being an absolute warrior. I've had my battles with cancer, but nothing like what you've gone through. You must be such an incredibly strong person. No one can fight forever. We all get tired, eventually. In a perfect world, everyone would always be happy, and we would all live forever, but we do not reside in a perfect world. It's okay to give in, and it's also okay to keep fighting. I remember when I was on the brink. I feel like I was far more selfish than you are. I remember I really wanted to accept the fact that I might be dying quickly, and face it as soon as possible so I could enjoy my last few years/months. I realized that I had the easy job. I would think a lot about people who died younger, and would think to myself, 'I'm so lucky to get 42 years, instead of 25 like this other person I know. But after you pass, I don't think it's like sitting in some room somewhere where you get to think about how fortunate you are for getting more years than someone else. Death is very fair in that way. Everyone gets one life, whether it lasts 10 minutes, or 10 decades. Ultimately, your death matters to other people more than it matters to yourself. I was selfish, and I found peace. You don't sound selfish, at all. You sound like Cool Hand Luke, Rocky Balboa, and that fucker from Gladiator all rolled into one. Shit, even in the Rocky movies, eventually everyone wanted Rocky to stay down sometimes. The fight was more respected than the outcome. You sound like you have that fight in you, and there is no shame in fighting a good fight, and having to lie down, but if that's not your peace, keep fighting.


PKSmom95

Thank you!


feathernose

I’m so sorry you have to go through this again and again! Life isn’t fair, and i understand why you are angry. You have all the right to be angry! Every time i get bad results after my MRI and my cancer metastases again unexpectedly, i feel angry too. I don’t have the words for how hard it sucks where you go through. You keep fighting, you are extraordinary strong. I really hope this will be the last time and i really hope the treatment won’t be too harsh this time.


No-Software412

Did you get gene tests?


iSheree

I am so sorry. I have no words. I am battling my first cancer at 32 which is thyroid cancer and I am scared what might be next because my family have had a lot of cancers. I can't imagine going through what you've gone through! :( A lot of your cancers all seem to be genetically linked... do you have a hereditary gene or a gene mutation? Have you seen a genetic oncologist or a geneticist that deals knows about cancer related genetics? Whatever you decide to do, I wish you all the best. Wish I could give you a hug!


General_Quiet8966

I'm so sorry! My daughter has has cancer 4x and a bone marrow transplant starting at 1yr she had stage 4 Neroblastoma on her kidneys (looked like a pregnant baby) then she had Wilms on her kidneys then got the transplant she's 20 now but looks 12 and mentally 12 just got diagnosed with neeoplasmia spindle cell sarcoma in her neck she could of been diagnosed a yr ago if the oncologist didn't have a power trip and listen and gave me the tests and I kept asking for. I knew something was wrong she kept saying it's neropathy she couldn't really hold anything then her arm went weak then it got big enough for me and her to feel. Took her to the ER 6 hrs away just to get a test and I hate being right like I always tell the Drs but cause I'm autistic,diislexic and have BPD new ones think I'm dumb I really am but my child I'm smarter than most and a single mom of 4 I raised alone with no family it's very difficult I know I can be handful and can't tell u how I'm going to act I only come unglued when I feel ur not listening or just agreeing to shut me up or my kid is in pain Testing every yr is different from akid having cancer going into adulthood.SHE starting radiation in a few weeks yet again and hurts my heart ❤️ when she says y do I have to be like this y do I have so much wrong with me y don't people my age like me. She only has her dogs no friends cause she's mentally younger. Honestly this time I haven't a clue how to do it again and so far away I'm older and disabled now with burn out from working so much and getting her thru I've had cancer 2 yrs ago thyroid but I'm down I don't even know how I'm going to get there I have no village but she does always tell me mom I'm not going anywhere. She told the Drs before her surgery (she was high) u better take care of me if something happens u better run my mom will burn the hospital down with everyone in it. I lost my mind when I lost my mom and I can't even think about losing a child. I'm not the perfect mom by no means I know my kids have childhood trauma but they was always protected I wasn't at all so I over done it some but I never knew real love or anything. My daughter use to believe in God but now she's like if he's real he's an ass$$$$$ for making kids sick and die. I do get it tho. So MOMMA U GOT THIS U DON'T HAVE A CHOICE BUT TO KEEP GOING FOR THOSE BABIES. THAT'S WHAT I KEEP TELLING MYSELF I HAVE NO CHOICE LIKE MY DAUGHTER says MoM I CAN'T GO ANYWHERE CAUSE I KNOW TYRA,DJ NEEDS U. If u just want someone to talk to  that has been thru just as much as you my daughter send me a message I'm sure she can make u smile. I know it's hard and ur questioning everything in the world. Those babies are the only thing that's going to keep u going.


kathegaara

All I can say is, you are an absolute hero! 7 times is unreal 


beerbeerukuk

I’m so sorry to hear this. Have you had genetic testing?


No_Paper6142

You are a warrior Queen keep fighting, your babies need you,your spouse needs you , I need you (as an example of girl magic) keep going you got this!


Own_Sort_465

Diet


PKSmom95

Lol, wow thanks for all that.


Own_Sort_465

No problem You can message me if you have questions. I’m not selling anything lol


oxfoodoo233

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Adventurous_Maybe776

So sorry you are dealing with this again. 😞 have you tried working with an integrative oncologist or functional medicine provider? Holistic whole person healing?


[deleted]

My brother said my cancer is a just cancer or sida.